I am very pleased to say that we will have two representatives from Melanoma Support Ireland attending this years annual conference in Brussels myself and Marion Heffernan another Irish Patient Advocate.
If you haven’t yet heard of MPNE I will give you a little background history. MPNE or Melanoma Patient Network Europe was founded by Bettina Ryll MD Phd as a result of her husbands diagnosis, in her own words it changed the life of her family forever, but also her view on medicine and clinical research.
MPNE’s vision is for access to prevention, early detection, and effective treatment in Melanoma across Europe.
You can find further information on their website.
The theme of this years conference is POWER TO THE PATIENT we will be discussing what patient empowerment means and what role patient advocates can play so as a result of that i have been persuaded to start a blog to keep everyone updated on the event, and any other interesting items that might appear on the horizon.